WHY DO WE WANT TO KICK SANFILIPPO TO THE MOON?
MEET
JACOB MOON
small-town superhero & child with Sanfilippo
Jacob Moon is an 15 year-old boy who was diagnosed with a fatal disease known as Sanfilippo Syndrome at the age of 7.
He is a trampoline-jumping, pancake-loving, Buzz Lightyear fan who has a massive fan base in his hometown.
Jacob is someone who needs a cure!
To learn more about Jacob, his family, and the fight for a cure visit the Cure Sanfilippo Foundation.
Follow Jacob’s Journey on Facebook.
“Jacob lights up the room with his smile.
He is such a wonderful kid.”
ABigail Bayer-Mertens Human | local high schooler & moonball 2018 volunteer
Mission
MOONBALL is an annual kickball tournament and family fun day organized by friends of the Moon family.
Our mission: To kick Sanfilippo Syndrome to the MOON!
Goals
01. AWARENESS
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We want people in our community to know about Sanfilippo Syndrome so that we can continue to embrace Jacob as a small-town superhero!
02. fun
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MOONBALL is a celebration of the connections between us. This community has a lot of love for the Moon family… and we are prepared to show it!
03. Support
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Jacob’s needs will continue to change. We want to provide financial assistance to help meet as many of those needs as possible.
04. cure
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We will support research until progress can be made to protect children from this debilitating disease.
Ready to help?
Volunteer
—
Donate
